The Sibling Collaborative is strengthening families by uniting people who have siblings with intellectual or developmental disabilities to think differently, live differently and feel differently.
As the sibling of a person with an intellectual or developmental disability (IDD) your experience growing up was not the same as that of your peers. You saw your parents giving extra attention to your sibling. You pitched in doing extra chores. You stayed out of trouble. And – most of all – you cared.
As you got older you left home and experienced the world, while your sibling stayed behind and didn’t have the same opportunities. You felt guilty. As you grew your career and your own family a looming feeling came over you when you thought about what was going to happen to your sibling when your parents could no longer provide care. Eventually you moved into the role of main supporter and carer. You felt alone.
If any of this resonates with you, you are in the right place. And, as fellow siblings, we understand you.
We are here to help.
This can be a lonely journey. The Sibling Collaborative unites siblings so that you feel understood, accepted and a sense of connection. Because we understand the family experience, we want to help you to strengthen your family by empowering you to think, live and feel differently – ultimately creating the life you want for yourself and your loved ones. Through our stories, workshops and e-learning we aim to highlight and inspire the great future waiting for you and your family.
Sibling Collaborative Updates
As the sibling of a person with an intellectual or developmental disability, your experience of growing up was not the same as your peers. You saw your parents giving extra attention to your sibling, you pitched in doing extra chores, you stayed out of trouble and most of all – you cared.
As you got older you left home and experienced the world, while your sibling stayed home and didn’t have the same opportunities. You felt guilty. As you grow your career and families there is a looming feeling when you think about what is going to happen when your parents can no longer provide care for your sibling. When you eventually move into the role of the go-to person for your sibling you can fall into crisis trying to maintain your family life, your career, your health, your parent’s failing health, and your sibling’s life.
It doesn’t have to be this way! The journey doesn’t have to be lonely. You don’t have to live in guilt. The crisis doesn’t always have to strike. You can design a life for you and your family that is connected to other people who are supportive, you can create a loving home for your sibling, and you can get your sibling the supports they need to meet their needs. You can do all of this by living a full and happy life yourself, and we will show you how.
We have three upcoming workshop now open for registration:
- Newmarket Workshop: February 23, 2019 from 9am to 5pm
- Oshawa Workshop: March 2, 2019 from 9am to 5pm
- Ottawa Workshop: March 30, 2019 from 9am to 5pm
Join the Sibling Collaborative and the Azrieli Centre for Adult Neurodevelopmental Disabilities and Mental Health for a discussion and to answer your questions about mental health.
Join Helen Ries and Dr. Yona Lunsky for a live event on:
Wednesday January 30, 2019 from 7pm to 8:30pm (Eastern Time)
If you are on Facebook, join us for this event on Facebook Live
If you don’t have Facebook, join us on Zoom
We have partnered with Durham Family Resources on Thursday, January 10th @ 7 PM in Oshawa for ‘A Sister’s Story For the Whole Family’. It is an evening to stimulate thinking about succession, the next generation, and different ways sisters and brothers (as well as other family members and allies) might begin to have conversations that will inform the future.
It would be great to have you there to join the conversation!
Click on this link register for this free event. https://goo.gl/forms/SFuVMFBCsB6eaJd73
Here is a story of how a brother helped to create a “Forever Home” for his brother Peter after their mother passes away.
“Within a nanosecond of learning about my mother’s death, I thought, ‘What will happen to my brother Peter?’
We want to offer a heartfelt thanks to all the siblings who joined us for our four pilot meetups held in Ottawa, London, Kitchener and Toronto. This was a learning experience for us so we appreciated all your feedback as well as your participation.
We heard from you that you want to continue meetups so now we are assessing how best move forward in the future. In the meantime, if you want to know what how the meetups went, here is a snapshot: