To date, there has be little research into adults who have siblings with developmental disabilities. With our partners at the Centre for Addiction and Mental Health (CAMH), we aim to bridge that gap and get a better understanding of the sibling experience over the life course.
Please participate in our COVID19 Sibling Study
In April 2020, the Sibling Collaborative with the Centre for Addiction and Mental has had a paper published in the Journal of Policy and Practices in Intellectual Disabilities. The study aimed to better understand the current challenges siblings experience and how requested resources may differ across three age groups: adults between the ages of 20 and 29 years, 30 to 49 years, and 50 years of age and older.
There is a paywall to access the article. It can be found https://onlinelibrary.wiley.com/doi/epdf/10.1111/jppi.12339.
Our Siblings, Our Health: Setting a National Research Agenda
As systems of care, such as services and governments, become increasingly reliant on siblings when parents can no longer support health and daily life management and continuity of care for their siblings with IDD, the need to better understand the importance of issues related to sibling caregiving will become greater. They symposium Our Siblings, Our Health will bring together siblings from across Canada with researchers and health system leaders to identify these issues build a national siblings research, policy and practice agenda.
This event has been postponed due to the Covid19 pandemic. Stay Tuned for new dates.
Sibling Needs Assessment 2017
The Sibling Collaborative believes that individuals supporting a sibling with a disability can experience significant stress in their roles. This stress is compounded by a lack of helpful tools, resources and information to guide, inform and support them.
To test this and other related assumptions, we launched the Sibling Needs Assessment Survey in the fall of 2017. We heard from over 360 siblings from across Canada. Read about what they had to say in our report.
CAMH Sibling Research
The Sibling Collaborative is proud have the Centre for Addiction and Mental Health (CAMH)’s Azrieli Adult Neurodevelopmental Centre as a research partner.
The Azrieli Adult Neurodevelopmental Centre is the first research and education centre in Canada dedicated to improving care for adults with neurodevelopment disabilities and mental health challenges. The Centre knows that ensuring the long-term wellbeing of adults with neurodevelopment disabilities includes understanding and being able to respond to the needs and challenges of their siblings.
There are a number of opportunities to study siblings, their mental health and how they are impacted by the programming we are offering through The Sibling Collaborative. This research is important not only to learn more about sibling needs and challenges but also to build this research base which does not yet exist in Canada.